Sunday, March 23, 2008

Response to Cara's Comment

Thanks for your comment, Cara.. The information on vertebral stapling is certainly interesting. You might want to consider posting this information at a site that deals more with initial scoliosis correction -- for instance, one of the National Scoliosis Foundation forums or the Scoliosis-Medical Yahoo group.

This particular blog is intended as a kind of road map, guide book under construction, and online source of mutual support and encouragement for women who have long since undergone the "old-fashioned" kinds of scoliosis treatment, followed by later revision surgeries for adult deformities resulting from the hardware implanted in their backs when they were younger. I hope the blog may also be of interest to any woman faced with a profoundly life-disrupting condition -- MS, cancer surgery and chemo, diabetic complications -- perhaps even a hurricane or tsunami; anything, in short, which forces a person to retool, reassess, rebuild, and renew.

While those of us with histories of AIS (adolescent idiopathic scoliosis) often do have kids -- especially daughters -- who likewise develop scoliosis requiring treatment, this particular site is intended specifically for us -- the grown-up moms who have already had our invasive fusions-- who, let's face it, may have few if any distinguishable vertebral segments remaining after all those osteotomies. Fortunately our children or teens with the misfortune to develop scoliosis as we did are likely to have easier and less invasive options available to them, as you suggest here. At least in Los Angeles, some children have undergone microsurgical spinal fusions. I am also very encouraged by the continuing development of technology for artificial disk replacement. But again, that is a subject for a rather different site from this one, and I certainly encourage you to check out some of those other sites if you have not already done so. The NSF, in particular, has forums devoted entirely to child and adolescent scoliosis.

That said, Cara, as far as I know you are the first person to post to my new blog, and I am delighted to have a comment from you!

I encourage other readers to post their thoughts in response to my own commentaries -- especially readers who have undergone major life-disruptions in their thirties, forties, or fifties. I envision this blog as a meeting ground, idea bank, and mutual-support-resource for those of us who are committed to rebuilding, recreating, whole new lives for ourselves after a period of trauma and derailment.

All the best to you,
Elizabeth

No comments: